DWED (Diabetics with Eating Disorders) is registered charity. Recent research shows that not only are females* who have type one diabetes at twice the risk of developing anorexia or bulimia, as many as 40% of 15 – 30 year olds regularly omit insulin. This practice can have devastating consequences such as organ failure, infertility, blindness and in the worst cases, death. Despite the horrendous complications and staggering prevalence deliberate insulin manipulation/ omission (or diabulimia as the press have named it) is not diagnosable and there are no current guidelines for the NHS on how to deal with the issue.
You may notice that we use the term ED-DMT1 and Diabulimia. In September 2008 new nomenclature was recommended at an international focus group held in Minneapolis composed of individuals with interest and expertise in Eating Disorders among individuals with Type 1 Diabetes. The group recommend that the term ED-DMT1 be used to designate Eating Disorder - Diabetes Mellitus Type 1. DWED uses this ED-DMT1 as it is representative of the vast range of Eating Disorders that affect those with Type 1 Diabetes. We also use Diabulimia as many of our members have identified with that term. Our aim is to be as inclusive as possible
twitter.com/diabeticswithed:
Today is the day! Gavin Griffiths is running 30 miles a day for 30 days and today he is dedicating his run to raise awareness of DWED! We are so honoured that he chose us for today. If you would like to donate then please go to: www.justgiving.com/shoesforsian
The 13th May is fast approaching - if anyone would like to help out, run, carry donation buckets, or cheer Gav on then please visit the event page for the day here: https://www.facebook.com/events/179676888851985/
Alternatively, if you would like to support the work we do please visit here to donate: www.justgiving.com/shoesforsian
Today is day 6 of Gavin Griffith’s 30/30 run! A type 1 diabetic himself, Gav is running 30 miles a day for 30 days in a row!! He is dedicating Monday 13th May to raise awareness of DWED. If you would like more info, or would like to get involved please visit the event page at: https://www.facebook.com/events/179676888851985/
If you would like to raise some money for our cause please do so at the following link:
Today marks day 1 of Gavin’s 30/30 Challenge! For those of you who don’t know about this, Gavin Griffiths is running 30 miles a day for 30 days in a row!
He has heard about the excellent work we do at DWED and has kindly offered to include us in his run. On Monday 13th May he will be running from Manchester to Liverpool (start and end point TBC) and has agreed to dedicate this day to the memory or our Sian seen as he will be running in her neck of the woods!
If you would like to donate then the page is here:
www.justgiving.com/shoesforsian
If you would like to see all the info and news on the day he runs for us then please visit our event page at: https://www.facebook.com/events/179676888851985/
Read about what DWED have been up to this quarter with our usual features.
And including:
The truth about Cinnamon
As a DSN: Lipohyperrtrophy
What is Nephropathy?
Cure in Dogs?
And our brand new section thanks to artist Amy Hearn AKA The Diabetic Dingbat
Hope you enjoy!!!
http://www.dwed.org.uk/files/Newsletter_issue14march2013.pdf
DWED is currently collating information on services across the UK who are experienced/ interested in our demographic. Do you work in a great Diabetes Center or provide specialist care to Type 1 Diabetics who have Eating Disorders? If so then please answer the questions below, email them to us and we will put your service on the Helpfinder. The idea is to create a cross network of those working in Eating Disorders and Diabetes so that our members will have a clear care pathway in the future.
Please confirm that you treat those with type 1 diabetes who also have Eating disorders, including those who deliberately manipulate/ omit insulin:
What type of service are you?
Where is your service based?
Who do you care for (i.e. age limits)?
What is your catchment area?
How to get a referral?
If self referral what is the process?
If GP/ Diabetes team referral who should be asked for?
What approaches are offered?
Do you have any further details?
Email to: info@dwed.org.uk
At DWED we understand that there are extremely limited resources for those who care for Type 1 Diabetics who also have an Eating Disorder. We are setting up a carer network for friends, relatives and partners. If you feel like you would benefit from this network or could give support then please complete our CARER NETWORK FORM found here: http://www.dwed.org.uk/Get-Involved/ and email it to: info@dwed.org.uk
We need people to come on board and help with the running of dwed. We are not currently looking for any more Health Care Professionals but we would love to hear from you if you have any financial, fundrasising, charity admin, compliance or English legal expeirience. Please fill out the TRUSTEE APPLICATION found here: http://www.dwed.org.uk/Get-Involved/ and send it to info@dwed.org.uk
We are currently looking for people to be press contacts, you may be a professional, a carer or someone who has recovered that would be willing to talk to the press about your experiences. At DWED we will endevour to ensure that you are fully protected and the interviews are non exploitative. We never talk numbers or allow pictures from when you were ill. We also choose our press carefully. If you would like to be added to our press database please fill out the PRESS CONTACT FORM which can be found here: http://www.dwed.org.uk/Get-Involved/ and email it to info@dwed.org.uk
Answer:
No of course I wouldn’t, the more the merrier :) only thing I would say though is be careful about posting numbers, they can be very very triggering (and I personally find tumblr to be quite triggering anyway). Good luck and if I can do anything to help let me know x
